Aicardi Syndrome / Infantile Spasms

International network. Founded 1983. 5 regional chapters. Support for families with daughters with Aicardi syndrome, a rare seizure disorder that affects primarily females and is characterized by seizures and retinal lesions. Resources, research projects, biennial conferences, phone support network, research group, newsletters, information and referrals. Dues $25/year.
Write:
Aicardi Syndrome Newsletter
1510 Polo Fields Ct.
% Denise Park Parsons
Lousiville, KY 40245
Voice: 502-244-9152
Website: http://www.aicardisyndrome.org
E-mail: aicnews@aol.com
Verified: 12/21/2007

Online. 1300+ members. Founded 1998. Support and information for parents and caregivers of children with infantile spasms. Opportunity to discuss their children, treatment options and offer support. Professionals welcomed.
Website: http://health.groups.yahoo.com/group/infantilespasms
Verified: 12/18/2007

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

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WebMD Medical Reference from the American Self-Help Clearinghouse

Last Updated: May 27, 2008

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